BBMRI-LPC Handbook for Practical Biobanking

Welcome to the BBMRI-LPC Handbook for Biobanking!

Here you can find relevant information (such as articles, presentations, etc.) about creating, managing & running and maintaining & sustaining a biobank. The Handbook is not a perfect guide through the biobanking process, but a collection of useful information around the biobanking issues.

Whether you are only thinking about creating a biobank or have already a fully functional one, we hope this handbook will offer you new thoughts and insights. Welcome to the world of biobanking!

 

HANDBOOK FOR BIOBANKING

Starting a biobank

  1. Rationale
  2. Business model
  3. Governing structure
  4. Personnel
  5. Facilities
  6. Hardware
  7. Software/ICT Systems
  8. Ethical and Legal Issues (ELSI)

 

Managing and running a biobank

  1. Quality management
  2. SOPs (Standardised Operating Procedures)
  3. Networks (BBMRI, P3G, ISBER)
  4. Collection
  5. Access
  6. Safety
  7. Science/Research

 

Maintaining and sustaining a biobank

  1. Harmonisation
  2. PPP (Public-Private Partnerships)
  3. Training and education
  4. ISO/Accreditation
  5. Benchmarking
  6. Fees

 

Useful links

P3G-toolkit: The Biobank Toolkit provides a one-stop location for access to biobanking tools.

Biobank learning: Resources that may be useful at different stages of biobank-based research

 

BBMRI-LPC presents

Biobank infrastructure: where, when, what level, what price?, Fay Betsou, IBBL, Luxembourg

Building finnish biobanks and biobank infrastructure, Anu Jalanko, National Institute for Health and Welfare, Finland

Starting from scratch: Estonian Genome Center, Andres Metspalu, University of Tartu, Estonia

Starting from scratch: The German National Biobank, Michael Hummel, Charité, Germany

BBMRI-LPC Forum (presentations)

BBMRI-LPC Practical Biobanking workshops (presentations)

 

Further reading:

Critical Issues in International Biobanking